For Patients
Partnerships for Global Genes
GlobalGenes.org
Global Genes is a 501(c)(3) non-profit organization dedicated to eliminating the burdens and challenges of rare diseases for patients, their families and disease communities globally. For nearly two decades, Global Genes has equipped rare disease patients and advocates with tools, training and support – to connect patients with needed resources, activate communities and advance research. Global Genes serves the more than 400 million people around the globe, and the nearly one in 10 Americans affected by rare diseases. With over 800 patient advocacy group members in the Global Advocacy Alliance, Global Genes works with patient advocates, industry partners and academia to build vital ecosystems to progress critical work in rare disease.